The British Red Cross provide excellent advice at camouflage clinics and are experts in this field. Your GP can give you a referral letter which is then sent to British Red Cross, 39 Sheepcote Road, Harrow, Middlesex HA1 2JL.
I was wondering if because I have discoid Lupus if this could weaken my immune system, It just seems like since I have been diagnosed I seem to pick up every little coughs and cold that’s going around but I'm not sure if this is related.
Patients are not advised to stay on Prednisolone for long periods of time. It is effectively used to reduce inflammation and swelling in the short term. However, this drug is only effective in suppressing disease. It does not cure it.
Many herbs can interfere with prescription drugs, or can be dangerous if taken in large quantities. It is important that you consult your GP before taking alternative herbal therapy, or dietary supplement. (Please read Anne’s story for a cautionary tale.)
Can you help me, my daughter (14) has SLE. Being a young girl she is interested in tattoos (permanent) and piercings (just upper ear). I understand there are age limits particularly for tattoos, but my question is whether permanent tattoos and piercings are out of the question because of lupus..
In general these are safe. Some years ago there was a controversial research paper that suggested that hair dyes caused lupus. However, subsequent studies have not confirmed this. Some patients with both discoid and SLE may be allergic to dyes and chemicals and should be aware of a possible reaction.
If you have active discoid lesions on your scalp, or you are suffering from hair loss as a result of lupus, I would be cautious about using hair dyes. Chemicals in the dye can act as irritants, (although nothing has been proven to link them with lupus), further damaging your hair follicles. Your hairdresser may be able to advise on what product may be safe for you to use.
My daughter who is 19, was diagnosed with lupus a few months ago. I am having a problem getting her to look after herself ie not drinking too much alcohol. Her kidneys have been affected and she has been undergoing some aggressive steroid treatment. Do you think that the alcohol will do her kidneys any harm or cause a lupus flare...
Yes, there is no evidence that botox injections have an adverse effect on lupus. However, the physician administering the botox should be aware of your diagnosis and also what drugs you are taking.
As far as I am aware the risks of corrective eye surgery are not increased by having lupus. However, many lupus patients have dry eyes and this may affect the outcome of surgery. You should discuss the diagnosis and treatment carefully with your ophthalmologist.
There is some evidence that 'leaky gut' is associated with diseases such as Ankylosis Spondylitis and Reactive Arthritis. At present there is little evidence of a similar phenomenon in lupus.
There should not be any problem for lupus patients undergoing colonic irrigation. However, if you have other bowel problems these should be mentioned to the person performing the colonic irrigation.
Having an existing medical condition does not necessarily prevent a person from becoming an organ or tissue donor. In the event of death, clinicians, taking account of that persons medical history, will make a decision about whether some or all organs or tissues are suitable for transplant...
The rules for blood donation have recently changed and whereas lupus patients were previously automatically ruled out from giving blood, some patients are now allowed to donate.
Desperate measures for a desperate disease. Not used in our clinic. Rituximab is the preferred treatment.
No, not as far as I know
No, but sweet potatoes are preferable as they have a low GI (glycaemic index) and we recommend the Low GI diet to patients. It was clinically trialled at our unit and the effects on patients were very beneficial. See our diet article for more information.
I am due to give birth in two weeks and am anti-ro positive (I have lupus/Sjögren’s with mild joint/fatigue symptoms, Hashimoto's hypothyroidism and Graves Eye Disease). I am concerned that breastfeeding whilst passing on my 'good' antibodies, might also pass on my bad antibodies. Is it possible to pass on anti-ro through breast milk?
There are no lupus adverse reactions to mercury fillings.
Dr Hugh McGrath has written a book on the subject with evidence of improvement.