Welcome to Lupus Trust
Official Support and Information
A resource for patients, carers, medical professionals and fundraisers.
In 1991 the Lupus Trust (previously St Thomas Lupus Trust) was set up to fund vital research into lupus and provide information on lupus. Since then, we have worked tirelessly with nursing staff, clinical research teams, patients and those who care for friends or family with Lupus. You can learn more about our background here.
Our aim is simple - we ultimately want to find a cure and in the meantime advance the treatment of lupus. We do our best to ensure factual information is shared around the world and that there is an understanding over the difficulties and often life changing circumstances that affect people with lupus.
Our online resource and community should provide many useful and interesting answers, however if you require more information or think we could benefit from additional content on this website, please contact us.
The Latest Lupus Trust News
Doctors at MD Anderson Cancer Center said they have found silicone breast implants are associated with an increased risk of some rare diseases and cancers.
"Some of the rare diseases that we saw were lupus, Sjogren's, autoimmune diseases,” Dr. Mark Clemens said.
In October 2017, Candice Smalling, a 36 year old mother of twin son’s passed away from lupus. Following her 17 year battle with the condition.
Candice's family are coinciding Lupus awareness month with the anniversary of Candice's passing and holding a Fundraising Ball in Coventry, West Midlands.
(Los Angeles, CA) – Actor Kazy Tauginas (“The Equalizer 2”) has announced today that he will be participating in the Walk to End Lupus Now® event organized by the Lupus Foundation of America. The event will take place in Los Angeles on Saturday, September 22nd, bringing communities together to raise money for lupus research, increase awareness, and rally public support for those who suffer from the life-threatening disease.
Fundraising challenges you can take part in for 2018/2019, including the iconic London Marathon!
We live a celebrity obsessed world, just take a look at the number of followers they have on twitter/instagram etc to confirm this, when celebrities speak the world listens. If they wear something or do something all the followers sit up and take notice, hence so many brands want to use a celebrity to promote their products.
People follow the daily lives of these people and feel they know them as friends and so who better to give information about health, aren’t friends and family the people we turn to t ask for advice? Some celebrities promote only themselves and their brand, others have used their high profiles for good and to raise awareness of various causes and illnesses.
One of the things people say most often when they see you is ‘how are you’, an innocent enough question to most people, but when you have a chronic illness are they asking exactly how you are or just being polite? How many people want the full low down of how we’re actually feeling?
My stock answer, even with people I know well, is ‘Oh I’m fine thanks’ and I’d be pretty sure a lot of other people with chronic illnesses are saying the same thing. So why do we give this answer?
The news comes from a rheumatologist from the University of Alberta who believes that symptoms such as chronic fatigue, cognitive impairments and muscle pain can be linked to patients who have been implanted with mesh devices.
Jan Willem Cohen Tervaert, director of the Division of Rheumatology explains.
“In my practice, I studied 40 patients who had mesh implants and found that almost all of them had symptoms such as chronic fatigue, cognitive impairment known as “brain fog,” muscle and joint pain “fibromyalgia,” feverish temperature, and dry eyes and dry mouth,” Tervaert said.
Model Robyn Lawley has shared shocking photographs of the injuries she suffered following a horrific fall down a set of stairs, earlier this year.
The 29-year-old, who was diagnosed with Lupus in 2015, had a seizure nearly two months ago, falling seven feet down the staircase at her New York home, landing on her face.
Childhood-onset systemic lupus erythematosus (SLE) differs from adult-onset disease in important ways, but treatment approaches generally have derived from the adult arena, a pediatric rheumatology expert said.
Young adults with systemic lupus erythematosus have a work loss incidence rate of 20% to 40%, right at a time when they are experiencing multiple transitions in their personal and professional lives, according to Carole Dodge, OTRL, CHT, of Michigan Medicine.