Welcome to Lupus Trust
Official Support and Information
A resource for patients, carers, medical professionals and fundraisers.
In 1991 the Lupus Trust (previously St Thomas Lupus Trust) was set up to fund vital research into lupus and provide information on lupus. Since then, we have worked tirelessly with nursing staff, clinical research teams, patients and those who care for friends or family with Lupus. You can learn more about our background here.
Our aim is simple - we ultimately want to find a cure and in the meantime advance the treatment of lupus. We do our best to ensure factual information is shared around the world and that there is an understanding over the difficulties and often life changing circumstances that affect people with lupus.
Our online resource and community should provide many useful and interesting answers, however if you require more information or think we could benefit from additional content on this website, please contact us.
The Latest Lupus Trust News
I often ask people what is the worst thing about having lupus and get varied responses, one response that other people might not expect is ‘I feel guilty’. Even thought we didn’t cause it and can’t control it, we can still sometimes feel guilty about having a chronic illness.
To support patients, care givers and healthcare professionals on World Lupus Day, an expert-led report, ‘A Vision for Lupus’ has today been published to help highlight gaps and inconsistencies in care and areas for action to address the gaps that can often exist for patients and their families living with lupus, a chronic, inflammatory, autoimmune disease that affects approximately five million people globally.
When it comes to virtual reality (VR), most people may think of computer games, but the application of VR is far more than that.
VR is widely applied today in medical services, particularly in pain management. Wearing a headgear equipped with VR technology, patients enter a virtual realm and are immersed in what they see. The experience effectively disperses their brain’s perception of pain, thereby easing the pain.
In 2018 Scarlett Schneider was diagnosed with a rare case of pediatric lupus, which nearly took her life. She recovered after a lengthy stay at Sanford Children’s Hospital in Fargo, the region’s only Children’s Miracle Network Hospital.She amazed doctors with her resilience and sunny disposition in the face of a life-threatening illness. Now she is bringing hope and encouragement to children and families across the country.
GSK announced that the US Food and Drug Administration (FDA) has approved, under priority review, the use of the intravenous (IV) formulation of Benlysta (belimumab), a B-lymphocyte stimulator (BLyS)-specific inhibitor, in children with lupus from as young as five years of age.
Toni Braxton will soon receive an honor that, to her, is just as prestigious as her seven Grammy Awards.
The R&B/pop star will be presented with Lupus LA’s Loop Award for her work on behalf of the organization’s ongoing fight against the autoimmune disease. The presentation will take place during Lupus LA’s 15th annual Orange Ball at the Beverly Wilshire Hotel in Beverly Hills, Calif. on May 4.
Fundraising challenges you can take part in for 2018/2019, including the iconic London Marathon!
Actor, writer and producer Kazy Tauginas has released his award-winning short film, Standing Eight on Amazon, with proceeds from the downloads and sales going to the Lupus Foundation of America.
There’s a lot written about ‘self care’ these days and a lot of misconceptions about what it means. It doesn’t mean having an expensive day at a spa, although that’s nice to do if you can afford it. Infact it can simply mean taking a minute or two to take care of you.
The 16th annual observance of World Lupus Day on May 10 will highlight how emotional support helps people with lupus cope with its health effects and on the need for lupus clinical trial volunteers.
World Lupus Day is sponsored by the World Lupus Federation, a global coalition of 200+ lupus patient groups, that seeks to raise awareness of lupus and advocate for more significant funding for lupus research, education and support services for the millions of people worldwide living with the life-threatening, chronic autoimmune disease.