Welcome to Lupus Trust
Official Support and Information
A resource for patients, carers, medical professionals and fundraisers.
In 1991 the Lupus Trust (previously St Thomas Lupus Trust) was set up to fund vital research into lupus and provide information on lupus. Since then, we have worked tirelessly with nursing staff, clinical research teams, patients and those who care for friends or family with Lupus. You can learn more about our background here.
Our aim is simple - we ultimately want to find a cure and in the meantime advance the treatment of lupus. We do our best to ensure factual information is shared around the world and that there is an understanding over the difficulties and often life changing circumstances that affect people with lupus.
Our online resource and community should provide many useful and interesting answers, however if you require more information or think we could benefit from additional content on this website, please contact us.
The Latest Lupus Trust News
Carrie Ann said that she only recently learned sh had lupus as her doctor forgot to tell her. “It’s so weird," she said. "I was diagnosed with autoimmune six years ago, but my doctor didn’t tell me I had lupus,” she continued. “I was having a colonoscopy and I saw my chart [read] lupus and I was like, ‘This is not my chart,’ and they were like, ‘You have lupus.’”
The launch of China’s first patient-assistance program boosting drug availability for needy patients with systematic lupus erythematosus was announced in Shanghai.
Treatment costs for the disease are high. Annual medical bills for SLE patients in Shanghai last year ranged from 34,000 yuan (£3,843) to 107,000 yuan (£12,100)..
"Many patients are in financial crisis due to the disease and some have to quit taking medication due to the expense,” said Hu Ningning from China Primary Healthcare Foundation.
When you have a chronic illness and particularity when you’re in the midst of a very bad episode or flare, it’s hard to feel grateful for anything. We get overwhelmed by everything we have to cope with and forget to express gratitude, yet if you think about it we all have something to be grateful for.
Season 17 of Keeping Up With The Kardashians airs on Sunday on E! A new promo for season 17 was released on Thursday, which shows Kim Kardashian getting emotional as she has a major health scare. Kim is shown at the doctor's office getting X-rays and testing for lupus.
"I feel this in my bones. I probably have lupus," the 38-year-old reality star tells her mom, Kris Jenner, as she wipes away tears and shots of Kim at the doctor's office flash on the screen.
Rene Tucciarone saved his wife's life once before as her kidney donor. Kani's kidneys were destroyed by the onset of lupus in 1989. But now he needs to find a stranger to save her again – and not just any stranger. It has to be someone with Type B-positive or Type O blood.
Cole Moscatel and his wife Kelsea, creators of new luxury, lifestyle platform Snob World, recently donated a generous sum to Lupus LA, a non-profit health organization in Los Angeles. Lupus hits close to home for the couple as Cole was diagnosed with the inflammatory disease six years ago at 15. Since then, he and his wife Kelsea have experienced first-hand the everyday struggles lupus brings.
Naps are not only beneficial because they make us feel less sleepy and more alert, but because they improve our cognitive functioning, reaction times, short-term memory and even our mood. Research also found that found that motor learning, which is where brain pathways change in response to learning a new skill, was significantly greater following a brief afternoon nap for regular nappers when compared to non-nappers.
If you have lupus you know all about napping, infact we’re professionals. So could we improve the quality of our napping? Here’s a few tips to get the best from your nap.
A Chinese husband was forced to pass up treatment for cancer so that his wife and daughter could both receive the medical care they needed.
Ke Meinan, 42, was diagnosed with stomach cancer in 2015 and his 46-year-old wife Wang Huaying diagnosed with breast cancer a month later.
But when their 16-year-old daughter was diagnosed with the autoimmune disease lupus, the family, from the eastern province of Jiangxi, realised that they could not afford to pay for all three of them to be treated.
After Alison Carter's daughter Amy was diagnosed with lupus and epilepsy as a teen, pain became part of her daily life.
Amy, from Halifax, Yorkshire, would take up to 30 pills-a-day but in December it all became too much - and she died of an accidental overdose aged 23.
We’re just not used to hot weather in the UK so when we get a sudden heatwave our body struggles to cope with it, especially sleeping. In countries that have more heat than we do they have air conditioning but it would be used so rarely here that the vast majority of us don’t have it. So what can we do to help us sleep in the hot weather?