Announcement

After more than 20 years leading the Lupus Trust, the time has come for me to step into retirement.

Over this time, it has been a privilege to guide the organisation, support patients and help develop trusted information and resources for the lupus community. Alongside this, overseeing and contributing to our social media channels has allowed the Trust to engage directly with patients, carers, and supporters, creating an active and informed community.

I would like to thank everyone who has supported the Lupus Trust over the years - patients, carers, healthcare professionals, supporters, partners and volunteers. Your engagement, feedback and shared experiences have played a vital role in shaping the charity’s work and impact.

Although I will be retiring, The St Thomas’ Lupus fund will continue as a Special Purpose Fund within Guys & St Thomas’ Charity. However, it won’t be possible to continue with the Lupus fund website and social media after my retirement, and the branding associated with the Lupus fund would also cease to be used. But please be assured that Guys & St Thomas’ Charity will still be able to accept donations to support Lupus research and patient care as it always has done.  Please contact the fundraising team at hello@gsttcharity.org.uk for any queries about supporting the fund’s essential work in the future.  

As I step away, I do so with pride in what we achieved together. I am grateful for the support I have received and for the opportunity to have been part of the Lupus Trust’s journey.

With sincere thanks to all who have been involved.

Angie Davidson



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Caring for Yourself During a Lupus Flare

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Caring for Yourself During a Lupus Flare

Managing a lupus flare can be physically and emotionally draining, so the goal is reduce inflammation, prevent complications, and conserve energy while also keeping your mind gently engaged.

If you’re living with lupus, this is about supporting your body — not pushing through.

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Little things can make big changes happen

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Little things can make big changes happen

There are small things you can do for your health, you don’t have to make huge changes to make a difference. Infact, making huge changes can be daunting and often make us fail at the first hurdle. Start with one small change and see if it helps you can then try other things as any improvement in our health at all is a big win for us.

WORLD LUPUS FEDERATION CELEBRATES 10 YEARS OF GLOBAL IMPACT

WORLD LUPUS FEDERATION CELEBRATES 10 YEARS OF GLOBAL IMPACT

The World Lupus Federation (WLF), co-founded in 2015 by the Lupus Foundation of America and Lupus Europe, is celebrating a decade of remarkable achievements in the fight against lupus. As the only global community organization dedicated to lupus, the WLF unites more than 200 lupus patient advocacy organizations from around the world, amplifying the voices of people living with lupus and driving awareness, research, education, and advocacy.

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Food glorious food!

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Food glorious food!

When a new patient asks for advice one of the first things I say is treat your body well, it needs your help. High up in the list of things I personally think is very important for your body (lupus or not) is good nutrition.

As we say in our section on diet there’s no particular diet that is recommended for lupus but there are foods that can help your lupus or on the opposite side of the coin make you sick.

Prominent Hong Kong actress Kathy Chow has died

Kathy Chow a prominent Hong Kong actress, singer and producer has died suddenly aged 57. Kathy is know to have had Systemic Lupus Erythematosus for several years.

Kathy was a leading Hong Kong acting star of the 1990s. She was best known for her role as Zhou Zhiruo in the 1994 TVB series The Heaven Sword And Dragon Saber. Her last film role was on 2021 action comedy, “Heroes Return,” directed by Yip Wing-kin. Kathy was lead actor and producer.

According to Chinese news site St Headline, Kathy was diagnosed with systemic lupus erythematosus. Her condition was not publicly revealed, so only a few people knew the reason why the actress could not move easily.

Her mother said she wishes her daughter will “stay happy in another world, your family is proud of you.”

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Lupus has a party and invites all its friends

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Lupus has a party and invites all its friends

When I met a lupus patient I’d ask what other autoimmune conditions they had. They’d always ask how I knew they had more than lone condition and I used to say it was like lupus having a party and invited all its friends to come along. In other words its sadly not unusual for us to have two or more autoimmune conditions, know as overlap syndrome.

Carpal Tunnel Syndrome operation. My story.

Carpal Tunnel Syndrome operation. My story.

Many, many years ago I was diagnosed by Professor D’Cruz with carpal tunnel syndrome, something that’s quite common amongst lupus patients. It causes tingling, numbness and pain in the hands, fingers and wrists because of pressure being put on the nervous system. Lupus can cause joint pain (arthralgia) and inflammation in and around the joints, resulting in problems like arthritis, tendonitis and as mentioned carpal tunnel syndrome.

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What I wish people knew about lupus

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What I wish people knew about lupus

I’ve had lupus for about 30 years and this is personally what I wish people knew.

It’s incurable and chronic. Just because you see us out and about doesn’t mean we’re ‘better’ or ‘cured’. We have some days that the pain level is tolerable and some days where it isn’t so we take have to take full advantage of the days we can function at all.

Jayden wins Young Hero award after saving mums life

Jayden wins Young Hero award after saving mums life

The ‘Who Cares Wins Awards’ takes place each year to celebrate healthcare heroes from the frontline NHS staff to the ordinary people who go above and beyond.

Jayden, aged 12, was revealed as the 2022 winner of the Young Hero award, after saving the life of her mum, Natasha, who suffers from Lupus and heart failure.

THE CONTENT ON THIS WEBSITE SHOULD NOT BE SEEN AS SUBSTITUTE FOR MEDICAL ADVICE. IF YOU HAVE, OR THINK YOU MAY HAVE, LUPUS, ALWAYS SEEK ADVICE FROM A QUALIFIED PHYSICIAN. FIND OUT MORE IN OUR TERMS OF USE.