LUPUS RELATED NEWS & UPDATES
Latest news from the Lupus Trust
(Los Angeles, CA) – Actor Kazy Tauginas (“The Equalizer 2”) has announced today that he will be participating in the Walk to End Lupus Now® event organized by the Lupus Foundation of America. The event will take place in Los Angeles on Saturday, September 22nd, bringing communities together to raise money for lupus research, increase awareness, and rally public support for those who suffer from the life-threatening disease.
We live a celebrity obsessed world, just take a look at the number of followers they have on twitter/instagram etc to confirm this, when celebrities speak the world listens. If they wear something or do something all the followers sit up and take notice, hence so many brands want to use a celebrity to promote their products.
People follow the daily lives of these people and feel they know them as friends and so who better to give information about health, aren’t friends and family the people we turn to t ask for advice? Some celebrities promote only themselves and their brand, others have used their high profiles for good and to raise awareness of various causes and illnesses.
One of the things people say most often when they see you is ‘how are you’, an innocent enough question to most people, but when you have a chronic illness are they asking exactly how you are or just being polite? How many people want the full low down of how we’re actually feeling?
My stock answer, even with people I know well, is ‘Oh I’m fine thanks’ and I’d be pretty sure a lot of other people with chronic illnesses are saying the same thing. So why do we give this answer?
The news comes from a rheumatologist from the University of Alberta who believes that symptoms such as chronic fatigue, cognitive impairments and muscle pain can be linked to patients who have been implanted with mesh devices.
Jan Willem Cohen Tervaert, director of the Division of Rheumatology explains.
“In my practice, I studied 40 patients who had mesh implants and found that almost all of them had symptoms such as chronic fatigue, cognitive impairment known as “brain fog,” muscle and joint pain “fibromyalgia,” feverish temperature, and dry eyes and dry mouth,” Tervaert said.
Model Robyn Lawley has shared shocking photographs of the injuries she suffered following a horrific fall down a set of stairs, earlier this year.
The 29-year-old, who was diagnosed with Lupus in 2015, had a seizure nearly two months ago, falling seven feet down the staircase at her New York home, landing on her face.
My story is on this website and if you’ve read it you will know that it took me over 4 years to get a diagnosis of lupus. In the end it was sheer luck that my GP got fed up of seeing me and referred me to a rheumatologist, who happened to be Professor David D’Cruz (a rheumatologist with a special interest in lupus, now at the Louise Coote Lupus Unit, London).
When you get a diagnosis of lupus you naturally want to learn all you can about it and generally it’s easy enough to get lists of symptoms from reputable and trustworthy sources so that’s all fine. However there are some things that you might have experienced that no-one mentioned and were left thinking ‘what the heck’?!
The U.S. Food and Drug Administration (FDA) has approved new automated diagnostic tests for lupus and ANCA-associated vasculitis, a form of blood vessel inflammation, Grifols, which will market these tests, announced.
