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I told you I was sick – the long road to a diagnosis of lupus.

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I told you I was sick – the long road to a diagnosis of lupus.

My story is on this website and if you’ve read it you will know that it took me over 4 years to get a diagnosis of lupus. In the end it was sheer luck that my GP got fed up of seeing me and referred me to a rheumatologist, who happened to be Professor David D’Cruz (a rheumatologist with a special interest in lupus, now at the Louise Coote Lupus Unit, London).

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Well that's a bit weird, strange things associated with lupus.

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Well that's a bit weird, strange things associated with lupus.

When you get a diagnosis of lupus you naturally want to learn all you can about it and generally it’s easy enough to get lists of symptoms from reputable and trustworthy sources so that’s all fine. However there are some things that you might have experienced that no-one mentioned and were left thinking ‘what the heck’?!

THE CONTENT ON THIS WEBSITE SHOULD NOT BE SEEN AS SUBSTITUTE FOR MEDICAL ADVICE. IF YOU HAVE, OR THINK YOU MAY HAVE, LUPUS, ALWAYS SEEK ADVICE FROM A QUALIFIED PHYSICIAN. FIND OUT MORE IN OUR TERMS OF USE.