The Louise Coote Lupus Clinic has been part of this international study group for many years.This group has led the way in setting up large scale international collaborative studies that have been very influential in understanding the clinical features of lupus.
For example, one important study showed that life expectancy has significantly improved for lupus patients over the last 40 years or so.
Bernatsky S, Boivin JF, Joseph L, Manzi S, Ginzler E, Gladman DD, Urowitz M, Fortin PR, Petri M, Barr S, Gordon C, Bae SC, Isenberg D, Zoma A, Aranow C, Dooley MA, Nived O, Sturfelt G, Steinsson K, Alarcón G, Senécal JL, Zummer M, Hanly J, Ensworth S, Pope J, Edworthy S, Rahman A, Sibley J, El-Gabalawy H, McCarthy T, St Pierre Y, Clarke A, Ramsey-Goldman R. Mortality in systemic lupus erythematosus. Arthritis Rheum. 2006;54:2550-7.