For many lupus patients, wintertime is particularly chilling.
That’s because they also suffer from the painful disorder known as Raynaud’s phenomenon (also known as Raynaud’s syndrome or disease).
Christmas gift ideas
Coping with Christmas
Some things that might trigger a flare: divorce, bereavement, virus and Christmas!! Yes Christmas, a wonderful but potentially very stressful time of year.
Lupus is unpredictable and can interfere with our lives, stopping us doing everything that we want to and that includes participating in Christmas celebrations.
So let’s look at a few Christmas hacks so you can participate in Christmas!
Coughs and sneezes spread diseases
Lupus treatment USA vs UK.
Interview with Equalizer 2 star, Kazy Tauginas
The many ages of lupus
I’m sure you’ve read the fact that the majority of lupus patients are between 15 and 45. This is correct, but lupus can develop at any age and can affect men and children too. Doctors may dismiss lupus if the patient falls outside the 15 to 45 age range and this may lead to even further misdiagnosis.
But you don't look sick
I doubt there’s a patient in the World with an invisible illness that hasn’t heard the phrase ‘but you don’t look sick’. I’m one of the ‘lucky’ lupus patients in the fact that I rarely look sick. I’ve only ever had one visible rash and that was on my legs otherwise I usually have no outward sign that I’m actually ill.
Celebrities speak and the World listens.
We live a celebrity obsessed world, just take a look at the number of followers they have on twitter/instagram etc to confirm this, when celebrities speak the world listens. If they wear something or do something all the followers sit up and take notice, hence so many brands want to use a celebrity to promote their products.
People follow the daily lives of these people and feel they know them as friends and so who better to give information about health, aren’t friends and family the people we turn to t ask for advice? Some celebrities promote only themselves and their brand, others have used their high profiles for good and to raise awareness of various causes and illnesses.
"I'm fine", our most common lie.
One of the things people say most often when they see you is ‘how are you’, an innocent enough question to most people, but when you have a chronic illness are they asking exactly how you are or just being polite? How many people want the full low down of how we’re actually feeling?
My stock answer, even with people I know well, is ‘Oh I’m fine thanks’ and I’d be pretty sure a lot of other people with chronic illnesses are saying the same thing. So why do we give this answer?
Unsolicited advice, the junk mail of life.
We're having a heatwave, a tropical heatwave
I told you I was sick – the long road to a diagnosis of lupus.
My story is on this website and if you’ve read it you will know that it took me over 4 years to get a diagnosis of lupus. In the end it was sheer luck that my GP got fed up of seeing me and referred me to a rheumatologist, who happened to be Professor David D’Cruz (a rheumatologist with a special interest in lupus, now at the Louise Coote Lupus Unit, London).
Research: Innovation or Invasion?
Well that's a bit weird, strange things associated with lupus.
When you get a diagnosis of lupus you naturally want to learn all you can about it and generally it’s easy enough to get lists of symptoms from reputable and trustworthy sources so that’s all fine. However there are some things that you might have experienced that no-one mentioned and were left thinking ‘what the heck’?!
