Heather's Story

Heather's Story

In 1966, when I was in High School, I experienced my first symptoms but diagnosis didn't come till 1983! My initial symptoms of aches and pains, coupled with tiredness, were put down to growing pains and the stress of study. As I was too tired to join in the usual teenage social activities I was isolated from my age group. No one understood the difficulty I had just getting the homework done.

Helen's Story

Helen's Story

I was a dental nurse until things went horribly wrong, not just for me but for my family too. It all started in January 2000. I had a pain in my left foot, at the time I just thought it was from wearing high heels at the Christmas work party! The pain got worse and then, when I woke up one morning, I noticed that the middle finger on my left hand was white. I felt generally unwell and then noticed that another finger was also white.

Lucy in the Sky with Diamonds

Lucy in the Sky with Diamonds

Lucy O'Donnell was 4 years old when her classmate at nursery painted a picture of her, surrounded it with stars and squiggles and took it home to show his parents."It's Lucy in the sky with diamonds," Julian Lennon told his father, inspiring one of the Beatles most enigmatic songs and carving his friend a slice of musical immortality.Lucy O'Donnell was 4 years old when her classmate at nursery painted a picture of her, surrounded it with stars and squiggles and took it home to show his parents."It's Lucy in the sky with diamonds," Julian Lennon told his father, inspiring one of the Beatles most enigmatic songs and carving his friend a slice of musical immortality.

Mandi's Story

Mandi's Story

I was first diagnosed with discoid lupus in my early 20's when I got a scaly patch on the top of my nose by my eye. I was referred to Lyle Street where the dermatologist saw that it was a discoid patch. After loads of blood tests and biopsies this was confirmed. At the time it was very scary as the information available was very old and didn't really relate to my condition as it was mostly all about SLE. I was treated with steroid creams and not much else for a long time.

Michelle's Story

Michelle's Story

I started noticing my fingers getting stiff; I wasn't too worried at first but was aware that something didn't feel right. I seemed to be very tired in the mornings, which was very unlike me as I'm very much a morning person and I couldn't understand it. I was also getting quite down and would just cry for no reason at all, I kept asking myself why am I feeling like this I've just got engaged I feel so happy with my life it just doesn't add up.