Patients Stories

Amaka's story

Amaka's story

Having lupus sometimes feels like being a sergeant in the Army. Having to be strategic, strong, determined and always trying to win a war by facing many battles. Some battles I have won and some battles I have lost. My journey started when I was 17 and before my diagnosis in 2000 I had never heard of Lupus or had any comprehension of how much my life would change because of it.

Angie's Story

Angie's Story

This may or may not have been the start of my Lupus but it certainly was the start of me having ‘classic ‘ recognisable Lupus symptoms.

I woke one morning feeling as if I had the world’s worst case of flu. I was very fit (ex WRAF Officer) and healthy, rarely ill, certainly never been in hospital and never complained when I had minor ailments, so there was a clue of how ill I was in the fact I absolutely insisted upon going to the doctor.

Anne-Marie's Story

Anne-Marie's Story

It all started around the age of 17. I would get stiffness in my wrists, which was making driving uncomfortable at times. I thought nothing of it, for the first few months, but then I started to get stiffness and swelling in my knees as well. Being so young, I didn't imagine it to be anything important or worth worrying about, but my mum was concerned about it and she encouraged me to go to the family doctors.

Caroline's story

Caroline's story

Hi, my name is Caroline Hill and this is my story. In June 1996 I was a happy, healthy 30 year old woman, I ran a wine bar, had a good life, worked long hard hours and played hard too. I loved water sports, the beach and football. A day out that summer led to my life being totally wrecked, I went to the beach on my day off to go surfing, by 10pm that night I was in my local hospital covered in what looked like a bad case of prickly heat!