My story is on this website and if you’ve read it you will know that it took me over 4 years to get a diagnosis of lupus. In the end it was sheer luck that my GP got fed up of seeing me and referred me to a rheumatologist, who happened to be Professor David D’Cruz (a rheumatologist with a special interest in lupus, now at the Louise Coote Lupus Unit, London).
When you get a diagnosis of lupus you naturally want to learn all you can about it and generally it’s easy enough to get lists of symptoms from reputable and trustworthy sources so that’s all fine. However there are some things that you might have experienced that no-one mentioned and were left thinking ‘what the heck’?!
A large-scale international survey reveals that low awareness of lupus results in public misconceptions about the disease.